Breathing Together.
Fighting PAP.
Pulmonary Alveolar Proteinosis (PAP) is rare, but you're not alone. The PAP Alliance unites patients, families, clinicians, and researchers to support, inform, and fight for better outcomes.
Our Mission
We aim to empower patients and families affected by PAP through education, support, and strong community. We do this by accelerating pathways to timely diagnosis, effective treatment, and groundbreaking research.
A Future of Care
We envision a future where every person affected by PAP receives a timely diagnosis, experiences compassionate support, is empowered through knowledge, and has access to cutting-edge treatments and someday, a cure.
Why Awareness Matters
PAP is a rare lung disease, affecting approximately 7 out of every million people.
Diagnosis Delay
PAP is diagnosed about 1 year after symptom onset on average, often following misdiagnoses such as pneumonia or asthma.
Types of PAP
Autoimmune PAP (aPAP) accounts for about 90% of adult cases. Secondary and congenital PAP are the other two types.
Global Reach
PAP has been reported in many countries. There are patient communities in North America, Europe, and Asia.
Through targeted programs, we bring clarity, connection, and hope to everyone affected by PAP.
How We Help
Understand PAP. Get Empowered.
Learn the science, hear from top experts, and find trusted information to make informed decisions. Our Education Hub is the definitive resource for living with and managing PAP.
You’re Not Alone. Join the Forum.
Become part of our online forum and support groups where you can connect with others who understand. This is the core of what the PAP Alliance is all about.
Share Your Voice. Strengthen the Community.
We're inviting patients, caregivers, and loved ones affected by PAP to submit blog posts and personal stories. Every story helps someone feel less alone.
Sign up for our newsletter.
Get the latest on PAP research breakthroughs, upcoming support groups, virtual meetups, and community events.