Breathing Together.
Fighting PAP.
Pulmonary Alveolar Proteinosis (PAP) is rare, but you're not alone. The PAP Alliance unites patients, families, clinicians, and researchers to support, inform, and fight for better outcomes.
Upcoming Educational Webinar
Coming in October:
Navigating Insurance &
Specialty Pharmacy Support
Watch our most recent Webinar
Breathing Together: Understanding PAP, Pulmonary Fibrosis & Where They Meet
Our Mission
We aim to empower patients and families affected by PAP through education, support, and strong community. We do this by accelerating pathways to timely diagnosis, effective treatment, and groundbreaking research.
A Future of Care
We envision a future where every person affected by PAP receives a timely diagnosis, experiences compassionate support, is empowered through knowledge, and has access to cutting-edge treatments and someday, a cure.
Why Awareness Matters
PAP is a rare lung disease, affecting approximately 7 out of every million people.
Diagnosis Delay
PAP is diagnosed about 1 year after symptom onset on average, often following misdiagnoses such as pneumonia or asthma.
Types of PAP
Autoimmune PAP (aPAP) accounts for about 90% of adult cases. Secondary and congenital PAP are the other two types.
Global Reach
PAP has been reported in many countries. There are patient communities in North America, Europe, and Asia.
Through targeted programs, we bring clarity, connection, and hope to everyone affected by PAP.
How We Help
Understand PAP. Get Empowered.
Learn the science, hear from top experts, and find trusted information to make informed decisions. Our Education Hub is the definitive resource for living with and managing PAP.
You’re Not Alone. Join the Forum.
Become part of our online forum and support groups where you can connect with others who understand. This is the core of what the PAP Alliance is all about.
Share Your Voice. Strengthen the Community.
We're inviting patients, caregivers, and loved ones affected by PAP to submit blog posts and personal stories. Every story helps someone feel less alone.
Webinar:
Navigating Insurance & Specialty Pharmacy Support
Coming in October
Navigating insurance, specialty pharmacies, and patient support programs can be overwhelming. Join the PAP Alliance for an educational webinar designed to help patients and caregivers better understand their options and the resources available to them.
What we’ll cover:
Choosing and Evaluating Health Plans: What to look for during open enrollment, how to compare coverage options, and where to find financial assistance programs or health charities that can help lower costs.
Specialty Pharmacy 101: How specialty pharmacies differ from your local retail pharmacy, including dispensing processes, insurance fulfillment, and what onboarding with a specialty pharmacy typically looks like.
Prior Authorization & Step Therapy Demystified: What these terms actually mean, why insurers require them, and practical steps for navigating the approval process without unnecessary delays.
Know Your Rights: An overview of protections like FMLA for patients and caregivers, plus practical guidance on applying for disability benefits.
Resource Toolkit: Every attendee will receive a post-event guide compiling the links, tools, and resources shared during the session for ongoing reference.
Registration information coming soon!
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