Privacy Policy

Effective Date: July 7th, 2025

PAP Alliance is committed to protecting your privacy. This Privacy Policy explains what information we collect, how we use it, and your rights regarding that information.

1. Information We Collect

  • Personal Information: We collect names, email addresses, phone numbers, mailing addresses, and basic demographic information.

  • Health-Related Information: We may collect non-sensitive details such as diagnosis and role in the community (e.g., patient, caregiver). We do not collect data subject to HIPAA. PAP Alliance is not a covered entity under HIPAA and does not provide medical care or treatment.

  • Technical Data: Like most websites, we may collect information automatically via cookies, including IP addresses, browser type, and device identifiers. The website is hosted on Squarespace, which may use cookies and analytics tools.

2. How We Collect Information

  • Via online forms for newsletter sign-ups, event registrations, or support inquiries.

  • Through website cookies or integrated third-party analytics tools.

3. How We Use Your Information

  • To send updates, share educational resources, and communicate event details.

  • To improve user experience and website functionality.

  • For non-identifiable data analysis and reporting.

4. Data Sharing and Third Parties

  • We use third-party tools (e.g., Google Analytics, Mailchimp) to operate and improve our services.

  • No personal data is sold or shared. Data shared with external partners is de-identified and used only for aggregate analysis.

5. Data Storage and Security

  • Data may be stored on platforms like Google Drive, which encrypts data in transit and at rest.

  • Access is limited to authorized PAP Alliance staff.

6. Children’s Privacy

  • Our website is not intended for children under 13, and we do not knowingly collect information from them.

7. Your Rights

  • You may request to access, update, or delete your information by contacting us.

8. International Users

  • PAP Alliance operates in the United States but may collect data from international users. We strive to comply with applicable international data privacy laws.

9. Changes to This Policy

  • We may update this Privacy Policy at any time. Please check this page periodically for changes.