Get Involved.
Be the Breath Behind the Movement.
Whether you’re living with PAP, caring for someone who is, or just passionate about making a difference in rare disease advocacy—there’s a place for you here. Your time, voice, and support fuel everything we do.
Join the Community.
Become part of our online forum and support groups where you can connect with others who understand.
Volunteer With Us.
Help with peer support, event planning, content creation, or administrative projects.
Give Today.
Your donation powers research, education, and patient support. Every dollar makes an impact.
Become a blogger.
The PAP Alliance Blog features experiences from patients and caregivers, plus guest posts from clinicians and researchers working to advance care and understanding of PAP.
These are the journeys of people living with PAP—told in their own words. From challenges to triumphs, each story helps break the silence around rare disease and builds connection.
Tell us more about your story.